The Don’t Care System coming to a town near you

http://www.telegraph.co.uk/health/elderhealth/10882025/Fine-print-of-care-rules-could-screen-out-frail-elderly-and-disabled-charities-warn.html

I have started the blog with a link because I have been notified of the contents within which will affect the lives of many people with disabilities, older people with degenerative illnesses & basically anyone who needs a little bit of help to live independently.

What is it that the Government don’t like about the ill, the frail, the elderly, people with disabilities because over the past 4 years they have systematically changed things to ensure that the most vulnerable in our supposed caring society are penalised for all societies ill.

I’m appalled at the way these new regulations can be interpreted and that is the real problem. Each person in charge of the Adult Services & Community Support all over the country can interpret things to suit their ever decreasing budgets. Councillors award the budget to the departments & then they “dole” it out to those who most likely shout loudest!

Who will shout for those who are to scared to shout? Who will care for those our society doesn’t wishes to leave alone? Who will help those who cannot help themselves?

I am deeply saddened by this but I promise no matter what I will speak out, I will shout for the help, I will care about those Society does not. Who will stand with me & do the same for the people of their communities?

I hope there will be legions who will hear my call to arms & defend those who are most vulnerable!

Respond below & pledge your allegiance to help in your neighbourhood. If enough of us do a little bit each then it will change many lives for the better!

Thanks for reading.

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Twitter Spats

Further to a rather public twitter spat today. I thought for clarity that I should publish the e-mails sent between John Pring of the Disability News Service & myself. I do have an e-mail sent by a senior member of the party also but will not publish that as they haven’t been party to the events of today.

I was asked, as you can see from below, by John Pring to commit to a 10 point disabled persons manifesto to be adopted but UKIP and promoted by the party in the EU. Please note that he states the 10 point plan is one put together from two Disabled Persons Groups from Europe. Not anywhere was I officially told that one or both of the groups are funded by EU money.

I stated and I still do that 3 of the 10 (numbers 7, 9, & 10) items i could on a cursory glance agree with. These where the only 3 of the 10 that could be utilised in the UK without being members of the EU. Obviously as a member of UKIP I am hardly likely to state that I support all 10 it just isn’t feasible in any reality that I would.

Was I set up to fail? Was I set up to reject them all so I could be cast as an unfeeling person who doesn’t want to make life better for the disabled people and their families in the UK.

Well make your own minds up, no doubt the there will be a mix of opinions but that’s ok.

For the record I am not paid, I work 99% of the time from my bed. I always reply to people who come to me via our national website and my personal website. I try to help anyone who asks me and there have been some lovely comments made about me and the help I have given people all over the UK. I use my own resources, my own stamps, everything. I pay for the website from my own meagre funds and ask for nothing from anyone. I do what I do because people need someone to turn to, I won’t change that and people who don’t like me or don’t think I’m acting the way they think I should. My response is at least I am trying when you try to give your time and assistance for free come back and tell me you have done it the way others expect you to, I bet you wont have and I bet you will have your own set of detractors !!!!

Can’t please all of the people all of the time!

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On 11 Apr 2014, at 15:11, “John Pring” wrote:
Hi Star

Hope all is well with you.

I’m putting a news story together for later this month on the disability policies of the main parties, before next month’s European elections. I have a list of 10 policies, which I have selected from the manifestos put out by two of the leading European disabled people’s organisations (see below).

Can you tell me which of them your party agrees with, and which it doesn’t?

My deadline isn’t for a couple of weeks so there’s no rush.

Best wishes,

John

1 To adopt and pass into law a strong European Accessibility Act (proposed EU legislation on the accessibility of goods and services in the EU internal market)
2 To adopt and pass into law the proposed EU directive on the accessibility of public websites (which will make those websites accessible to disabled people)
3 The adoption of the proposed general non-discrimination directive (EU law designed to protect disabled people (and other groups) from discrimination in all areas of life)
4 The ratification by the EU and all member states of the Optional Protocol to the UN Convention on the Rights of Persons with Disabilities
5 The introduction of a legal right to live independently
6 The introduction of a dedicated directorate for disability within the European Commission
7 To stop EU funds being invested in segregated institutions for disabled people
8 To ensure inclusive education for all disabled children and young people
9 To provide more funding for local and national organisations led by disabled people
10 To reverse austerity cuts in services and benefits for disabled people

Here are the two original manifestos, if you want to see where these came from:

European Disability Forum:
https://www.dropbox.com/s/47lnldkxbyg7pi2/EDF%20Manifesto%20on%20the%20EU%20elections%202014.doc

European Network on Independent Living:
http://www.enil.eu/wp-content/uploads/2014/03/ENIL-Manifesto.pdf

John Pring
Editor: Disability News Service
Author: Longcare Survivors: The Biography of a Care Scandal
Tel: 020 8446 5900, 07776 206595
Email: john@disabilitynewsservice.com
Website: http://www.disabilitynewsservice.com
Twitter: @johnpringdns

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From: Star Etheridge [mailto:staretheridge08@hotmail.co.uk]
Sent: 11 April 2014 15:55
To: John Pring
Subject: Re: European elections

Dear John

On a cursory glance I think 7, 9 & 10 are ones that I personally agree with.

Many of the others are already available in British Law. As for laws of other countries I cannot confirm the status.

As you know MEP’s do not make the law, they have very little influence on any of the directives/laws that are put through to be voted on.

The Council Of Ministers, we do not vote for them & have very little if any influence on the legislation that is put forward for the MEP’s to vote on.

The laws are usually put through on bloc as a raft of legislation & even if there is one item in the bloc that any MEP agreed with they will have to assent to say 9 others they do not agree with.

I have put the questions to our policy director as this is above my jurisdiction as a Spokesmen.

I would also like there to be a complete repeal of “The Removal Of a The Spare Room Subsidy” legislation but if not a full repeal then at least to have Disabled exempt from housing benefit reduction.

Best wishes

Kindest regards

Mrs Star Etheridge
UKIP Disability Spokesman

http://www.staretheridge.co.uk

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On 25 Apr 2014, at 12:07, “John Pring” wrote:
Hi Star

Just chasing you on responses to the European elections questions (see below). Next week will be ok, but the final deadline is next Friday (2 May).

Hope that is OK and all is well with you.

Best wishes,

John

John Pring
Editor: Disability News Service
Author: Longcare Survivors: The Biography of a Care Scandal
Tel: 020 8446 5900, 07776 206595
Email: john@disabilitynewsservice.com
Website: http://www.disabilitynewsservice.com
Twitter: @johnpringdns

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From: Star Etheridge [mailto:staretheridge08@hotmail.co.uk]
Sent: 28 April 2014 12:56
To: John Pring
Subject: Re: European elections

Hi John

I have not had any communication from our Policy Director. So I can only say that policies 7, 9 & 10 are those which I personally support as UKIP Spokesman but I cannot say that I have the Policy Director nor our NEC’s support.

So I can only say that I personally support 7, 9 and 10 which I think are very good common sense clauses.

Best wishes

Kindest regards

Mrs Star Etheridge
UKIP Disability Spokesman

http://www.staretheridge.co.uk

Please leave any comments at http://www.staretheridge.co.uk/comments-and-guestbook/

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On 28 Apr 2014, at 14:31, “John Pring” wrote:
Hi Star

I’m afraid this will not look very impressive after your interview last year, which pledged a ‘radical change’ on disability. Also, I am not looking for your personal views, but the party’s official lines. I think the policy director’s refusal to reply to your email will suggest to readers that your party does not see disabled people as a priority.

You’ve still got until first thing next Monday to turn this around, though.

Best wishes,

John

John Pring
Editor: Disability News Service
Author: Longcare Survivors: The Biography of a Care Scandal
Tel: 020 8446 5900, 07776 206595
Email: john@disabilitynewsservice.com
Website: http://www.disabilitynewsservice.com
Twitter: @johnpringdns

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